Wednesday, November 30, 2011

Dont tell me they can't.

A while back, a medical professional told me:
"Well right now things are going good, but Kaden will always have issues and things will get bad again."

Excuse me?

First off, my God is a big God. He is the Great Physician. And I KNOW all things are possible. I believe in miracles. If God wants to heal Kaden 100%, He will. He may choose not to - but I know if He chooses not to heal him 100%, Kaden is still going to live a pretty awesome life. Being differently-abled is not a curse.

Secondly, research shows that much healing can occur in the brain if a child suffers from brain trauma, lack of oxygen, ect. Research also shows that kids with multiple aspirations, once the aspiration problem has been resolved, can regain 100% lung function. AND laryngomalacia, typically effects kids only in the first few years of life, and barely after 5 years of life. Thus, I feel strongly his apnea will be resolved.

and Third. Don't ever tell me my kid is doomed to a life of sickness and disabilities. Just don't. Keep those thoughts to yourself.

Fourth. These boys really like to prove people wrong. Including me.

Believe me. I have had my doubts and worries. If you asked me a year ago, I would have told you I didn't think the boys would ever walk. But they proved me wrong and are taking baby steps as I hold there hands. They will walk. It may be with a gait trainer and later a walker...but they will get there.

Perhaps I am a wee bit competitive. But that helps motivate me as there mom to motivate them.

Our beloved Dr. O. (who I know would never say aloud her doubts and fears )told me a few months ago that she never thought Isaiah would be a little monkey - but he was proving her wrong.
Another time, after seeing a neurologist and then following up six months later the neurologist told me about Isaiah - wow, this is a completely different child.

And then my favorite Elliot hospitalist- Dr. Abrams - Abbey, I never thought Kaden would be sitting here, eating and playing with toys." Little did she know, she was the one who instilled all that hope in me right after we first got Kaden. Even though, she didn't know if Kaden would even live at the time, she whispered gently to my very sick boy: "One day Kaden you will go to school. You will learn math. And the girls will love you." Dr. Abrams taught me a lesson that I will live by every day: Believe in miracles and surround yourself with doctors and nurses who even in their doubts, will support you in your quest to give the best life possible to those little boys.

So here's to my little men who were never supposed to:
-Make it out the NICU
-Drink again
-Eat normally
-Tell me their needs through signing/Ipad
(yep they can do all of the above well)

Now for some goals:
-Walk with assistance
-Learn to get from sitting from laying down

Game on.


Norah said...

I love hearing your updates! All your kiddos are AMAZING!

sarah said...

might be my favorite post ever. go kick some butt boys!!!!

Lacey said...

I get these e-mails from one of my homeschooling sources and she said that the most powerful word she has had to learn with her children and with her self is the word "yet".

My child cannot walk - yet.
My daughter can not read - yet.

Pretty inspiring I think.

Love you guys.

Maggie Michael said...

I found my mascara this morning dang it...

Even little things like K's scar on his eye. Now that is gone and that makes it harder to tell him from Ziggy (Ps. I am going to make that nick name stick!) These boys prove that my God is real and that He is ever so Mighty!