Having a baby in the hospital is tiring and stressful. We love visiting K. We do not love the hour + drive to Boston.
After having a baby in the hospital for over a month, I was a just a bit miffed to hear that that the pulmonary doctor wanted to re-run a test. (this test takes about a week to be scheduled, performed, and then have the results read.) Especially when about an hour earlier, we were being prepped on going home. It was disappointing to say the least.
My mom, dad, Morgann, Baby I and I were on a walk around Boston near the hospital when I heard the news that K. would be staying for the next week or so. I was mad. I was cranky. I was not rejoicing that he has the best care in the country. My mom chided me to thank God anyways. I mumbled under my breath like a rebellious toddler apologizing, "thank you God that he is staying." I didn't mean it at all.
As we walked closer to the hospital, a hearse was leaving Boston Children's Hospital. At first, I did not even realize what that meant. Mom pointed it out to me - Abbey - a hearse just left the hospital. A mommy and daddy are NEVER taking their baby home. A parent's worst tragedy. I stopped and prayed for that family. Though we do not know K's future, it is seemingly not that grim. He will come home. He will get stronger. And I firmly believe he will LIVE. K will live life. My perpective was quickly changed. Boston is doing above and beyond to ensure K thrives. And I am even grateful that he is still in the hospital getting the best care.