This one

this one.

he likes to keep us on our toes.

he must really like rides in ambulances.

but he ought to learn that rides in ambulances = lots of pokes, getting a catheter, ouch! and other not-so-fun stuff in the hospital.

for an ear infection.

he could have been on a plane to SC. But instead chose to visit our friends at Elliot.

but I also know: "All things work together for good to them that love God."

And we do.

And we know its part of his plan.

So now we are home again. His ears have been treated by a very strong antibiotic.

His lungs are clear.

We are getting a new pulminologist because of our good friends at Elliot.

Things worked out.

We aren't chilling on the beach in SC.

But this is where I am supposed to be. At home. With K sleeping soundly in the other room. While I watch TV, drink sparkling grape juice and blog.

It all does work together for good.

And much thanks again to Dr. Abrams, who gave me hope a year ago when K was sick. And gives us hope today. And stands by us and advocates for us.

Camping

This past weekend we went camping. Tent camping. The five of us in a tent. Along with some oxygen, a pulse ox, our feeding tube set up, and nebulizer. And guess what, we had a blast! The medical stuff barely got in the way and K was doing so awesome. He has been so healthy lately.

It was foster care appreciation weekend at Jellystone Park in Ashland NH. I thought that Jellystone would be completely cheesy for camping - but it was so fun and located on a pretty river. Plus, I am pretty sure they spray for mosquitoes - it was nice camping without slathering in OFF! and only getting two bites. (When we unpacked at home, I got about 4 four bites!) Morgann had an awesome time. She loved the splash park and the pool and swimming in the river. I enjoyed just sitting quietly under our canopy while the boys slept outside, by the river. It was serene.

Much thanks to Jellystone for the free campsites. We will be back:)

The start of Summer

Ahhh, Memorial Day weekend. What a lovely break and start into the summer. Splashing in pools, cook outs, fishing, baking pies, long walks...it was refreshing:)

Three in a row

Lots of posts!

So my little guy is home and taking a good nap. He basically boycotted sleep in the hospital. He seems perfect:) He's such a little miracle and a fighter.

So we head out on Thursday for Virginia to celebrate the life of Grandma Peggye. She will be missed. I am so glad she got to meet the boys in February.

Miracle?

After my last post, I fell asleep until 5:45 a.m. and texted Rich at the hospital. K was doing really well. No fever and happy. I later joined them at the hospital and got the whole story. So K threw up as soon as they got in the ambulance. His chest X-ray looked okay and all they could find was an ear infection. His WBC was 29000 which is high - and indicates infection. Here's the crazy thing. My little fighter went from a fever from 106.7 to 98.6 with just one dose of tyelonol - and he threw up within 20 minutes of getting that dose. He did not receive IV antibiotics until later in the morning - like 7 a.m. His fever NEVER came back. I really think God healed that little bugger. Today he seems perfect. Super happy. Great oxygen saturation levels on room air - like 96-98% which is REALLY high for him. He has had two rounds of IV antibiotics and will stay tonight so they can do a third round in the morning - but he is really pretty much perfect for K. Totally unexpected and miraculous. After the ambulance left at 3:15 a.m. early Saturday morning, I completely expected him to be intubated and life flighted to a hospital with a PICU. God had other plans!

Crippling Fear

Tonight I woke up to the familiar beeping of K's alarm. Its not a crisis anymore when I hear it go off. Most of the time, it is a false alarm or has fallen off his foot. Tonight, however, it was the real deal. When I got in his room, both alarms were red - heart rate and oxygen levels. My heart skipped a beat - HR 211, O2 83. A high heart rate always indicates fever for K. I grabbed the thermometer off his dresser and stuck it in his mouth. 106.7. I felt paralyzed. I grabbed the tylenol from his dresser, measured out 5mL and put it in his G-tube. I ran to the kitchen to get water to flush his G-tube and woke up Rich. Found my phone in the kitchen and called 911. Took K off the low flow oxygen regulator and hooked him up to the big concentrator and upped his O's to 3 ltr. That's alot of O2 for my boy. Way too much. He still was satting low. I grabbed K out of the crib and held him upright to try to keep him awake. He started crying. To me, crying was good thing. I stuck my finger in his hand and he gripped it. The paramedics arrived. Whisked him off to the ambulance. Then I crumbled. Nausea and shaking overcame my body. Called my mom. She tried to calm my very anxious heart. She prayed with me. Called Rich. Fever down to 104. O2 down to 2 ltr and 97%. I could breath normally again. My shaking stopped. I wish I had more faith to not be overcome with fear and trembling even when my baby's health is so fragile.

God give me more faith. More trust. Give me the strength when I am crippled with fear. Protect my children.

Thing 1

Thing1 needs a sneak peak picture too, don't you think?